Acromegaly is a rare condition usually caused by a benign pituitary tumor that leads to the excess production of growth hormone. This excess hormone causes body tissues and bones to grow. Over time, it can result in abnormally large hands and feet, along with many other symptoms.
To provide clear and easy to access information about acromegaly and its treatment, W was asked to develop a simple yet informative disease education website. The goal of the website is to increase awareness and understanding about this rare condition amongst patients, as well as friends and family members.
Communicating with patients is a complex process, not only from a regulatory perspective but also from the need to make sure that both the language and content are relevant to patients, friends, and family members. This includes using terms, words, and phrases that the target audience will be familiar with.
Based on this understanding, W, in collaboration with Camurus, developed acromegalyandme.com to present key information about acromegaly and its management.
The content on the acromegalyandme.com website has been reviewed and endorsed by acromegaly patient advocacy groups. This ensures that the information is clear and reliable, helping patients, families, and anyone seeking guidance understand the condition, its symptoms, diagnosis, and treatment. It aims to support newly diagnosed patients, improve conversations with healthcare professionals, and raise awareness of this rare disease, whose diagnosis is often missed or delayed.